Patient-reported outcome measures for retinoblastoma: a scoping review
نویسندگان
چکیده
منابع مشابه
Patient involvement in the development of patient‐reported outcome measures: a scoping review
BACKGROUND Patient-reported outcome measures (PROMs) measure patients' perspectives on health outcomes and are increasingly used in health care. To capture the patient's perspective, it is essential that patients are involved in PROM development OBJECTIVE: This article reviews in what ways and to what extent patients are involved in PROM development and whether patient involvement has increased...
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BACKGROUND Chronic hepatitis C (CHC) and its treatment are associated with a variety of patient-reported symptoms and impacts. Some CHC symptoms and impacts may be difficult to evaluate through objective clinical testing, and more easily measured through patient self-report. This literature review identified concepts raised by CHC patients related to symptoms, impacts, and treatment effects, an...
متن کاملPatient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs)
In recent years, there has been an increased focus on placing patients at the center of health care research and evaluating clinical care in order to improve their experience and ensure that research is both robust and of maximum value for the use of medicinal products, therapy, or health services. This paper provides an overview of patients' involvement in clinical research and service evaluat...
متن کاملCorrelation of Single Assessment Numeric Evaluation (SANE) with other Patient Reported Outcome Measures (PROMs)
Background: The Single Assessment Numeric Evaluation (SANE) is a simple, one-question patient-reported outcomemeasure (PROM). We systematically reviewed correlations between SANE and more extensive PROMs.Methods: We identified studies with correlation coefficients between SANE and other shoulder, knee, and anklespecificPROMs. We calculated mean, median and range across studies...
متن کاملPatient reported outcome measures in practice.
1Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, 35 Centerra Parkway, Suite 300, Lebanon, NH 03766, USA; 2Dartmouth-Hitchcock Health, Lebanon, NH, USA ; 3 Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Sweden ; 4Rare Diseases Sweden, Stockholm, Sweden ; 5Genia, Stockholm, Sweden ; 6Hansen Law, Stockho...
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ژورنال
عنوان ژورنال: Journal of Patient-Reported Outcomes
سال: 2020
ISSN: 2509-8020
DOI: 10.1186/s41687-020-00232-7